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Topic: UNREST - please watch and support this film!

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UNREST - please watch and support this film!
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unrest5.png

'Unrest' is a Sundance award-winning film, about MECFS

made for anyone who has ever lived with or loved someone fighting chronic illness. 

The film is coming to UK cinemas this Friday - please watch and support, it is very important to me personally!

 

https://www.unrest.film/



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Marvellous Molonian Moderator
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Thanks for sharing this trailer, domino. I'm going to check out where this film will be showing near me. It looks like a powerful and emotional film.

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I heard something about this a couple of weeks ago. Thanks for the trailer Domino, it looks really well put together. I'll look out to see if my local cinema gets it and failing that, the DVD release will presumably be not long behind.

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You're welcome Rosie, and yes please do watch this film if you can and even better if you can help spread the word.

It has been in the media fair bit this week Maghat, and yes there will be a DVD at some point.

My story is similar to Jennifer's and others portrayed in this film, beginning with a nasty unknown virus from which I never recovered - over 18 years ago. Of those 18 years I have spent the majority bedbound and also a few years in a dark room unable to move at all, to speak listen, think even, (thought processes would not work at all). It really is a barely living hell, isolating and unbelievably hard to endure. Things have improved in recent years, I can engage with the world through the internet (which was not an option for years) but i am still largely bedbound. It is time the world stopped mistreating the thousands and millions of people suffering, and unable to stand up (literally) for themselves, with this hideous condition. This film is so inspiring to me, as well as deeply upsetting. I don't talk about my illness publicly because of the fear of the continued ignorance and judgement. I feel very vulnerable even writing this (to the point I cannot guarantee I won't delete it at some point). The forum is the place I have created and come to escape, and I consciously choose to not focus on it here, so I am a tad conflicted about this. But as the film title says, it is time for UNREST because things need to change, and not just for me. 

 



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UK cinema screenings

unrestuk.jpg

 

iTunes

Unrest is available in the US & Canad on itunes from this weekend and will be available on UK itunes 31 October, and can be pre-ordered now. 

unrestitunes.jpg

 

Great review by Mark Komode



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Marvellous Molonian Moderator
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Well said, domino. And thank you for sharing your experience with us.

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The internet seems to have been a blessing for many with ME, I have two "forum friends" of many years standing who are affected at different levels. Glad you've found it offers you a way to engage too, Domino.

Not having seen the film I don't know how much it says about the state of current research but it does seem that the charge of "malingering" is being more and more thoroughly discredited (and hopefully that means the stupid judgements will decline). I have MS so I was really interested to see the stuff fairly recently about lesions in the nervous system since that establishes a similarity between the conditions. Research progress always seems frustratingly slow but things like this film can only help in raising awareness and maybe focusing some research brains on finding new ways to improve life for many.

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Thank you for your kind and supportive comments Maghat. There is an awful lot of research on the biological nature of ME, the one that fits me most is the mitochondrial failure model. My heartfelt best wishes to you in your own struggles with chronic illness.xx

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Thank you Domino. At the moment I'm lucky enough that the effects are not too severe and I can do most things fairly "normally".

Interestingly the Newcastle showing of the film on Wednesday includes a Q&A session with the Dean of Medicine from the University - I just looked and she's also Director of Newcastle Centre for Fatigue Research (Julia Newton). This week is really difficult for me and sadly I don't think I can make the trek into Newcastle though.

Let's hope the likes of Julia Newton keep their big brains working to translate identifying causes into ways to make a practical difference.

(PS - if you decide at some point you want to delete your post then obviously feel free to delete this subsequent discussion, too)

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Hi Maghat, truly glad to hear life is fairly open to you at the moment.

I'm aware of Julia Newton, but have to say her 'fatigue' research is slightly side stepping the issue as far as MECFS is concerned. And part of the problem with misunderstanding this illness. I and others reject the chronic fatigue label for that reason, its Myalgic Encephalomyelitis, a multi system neuro immune illness, of which fatigue is only a tiny part and the word does not cover it in terms of severity of length of symptom.
If I could recommend any Dr in the UK field it would be Dr Sarah Myhill, for anyone interested!

I must confess, I am not entirely comfortable talking about me or ME, and sometimes a little information, or looking at one approach, is worse than no information at all and can be misleading. But, I really wanted to give the information about the film so people can inform themselves. So please forgive me if I don't elaborate further!

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Molonian
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Looks like I'll be visiting Newcastle next week, Maghat!
My mam's godson suffers from ME and I know it can be disabling at times. His followed a bout of flu when he was about 13. Everyone thought he was just trying to dodge school, it took a while for him to be taken seriously by anone other than his mother. He actually ended up getting home schooled for a couple of years. He's a doctor now but still has bouts of illness after all these years. I suppose it's something you never get rid of. I don't really know much about it, other than its effects on him, so will find this informative.

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Damiac
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Thanks for sharing this trailer domino, looks very moving and touching movie about this illness. I like these movies where you watch things from another persons perspective. And I like the message hidden in this story, how powerful and strong people are when they face the impossible.

These kind of films let you step insinde to another persons world. I can't imagine what this is like and maybe after seeing this I might be able to understand MECFS better. Hopefully there will be a DVD so I can have change to see this.





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Team DaMo
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To be fair, I didn't see anything on the Centre for Fatigue Research web page that claimed to be directed at ME specifically so it would be interesting to see what her perspective actually is. Will you go on the Wednesday Ellie?

I suspect ME and MS are similar in another respect Domino - sit down with a group of 10 sufferers and you'll have 10 very different sets of experiences and maybe just a handful of common symptoms. As you say, that can make it very hard to have a discussion that doesn't get confused or sidetracked by a particular take on it. I guess the more people can talk about it, the more understanding there could be of the different effects and issues. I do understand the reticence though, I rarely say "I have MS", either.

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Team DaMo
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Enlightenment is really important. I myself have not yet had to deal with this topic. That's why I'd like to see this movie. In Germany probably only on DVD.
It is important that research does everything to get better results to help people in such situations.
Great that you have drawn attention to the topic.


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UNREST is now out on iTunes and Amazon Video!

Please watch and spread the word!

I found it a moving, affirming, heartbreaking, inspiring, powerful and very very important film.

 



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For anyone in the US who is interested, 'Unrest' is available all week to stream for free on PBS here

For everyone else, the film is available on iTunes, Amazon, google, and many other on demand platforms and now also on DVD and blu-ray.

 

There was also a brilliant article in The Independent at the weekend, link below for anyone interested to read.

 

Time for Unrest: Why patients with ME are demanding justice

 



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Team DaMo
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A really well researched and detailed article.

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Yes, exactly what I thought too Sana. Thank you for reading it!

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