Thanks for sharing this trailer, domino. I'm going to check out where this film will be showing near me. It looks like a powerful and emotional film.

You're welcome Rosie, and yes please do watch this film if you can and even better if you can help spread the word.

It has been in the media fair bit this week Maghat, and yes there will be a DVD at some point.

My story is similar to Jennifer's and others portrayed in this film, beginning with a nasty unknown virus from which I never recovered - over 18 years ago. Of those 18 years I have spent the majority bedbound and also a few years in a dark room unable to move at all, to speak listen, think even, (thought processes would not work at all). It really is a barely living hell, isolating and unbelievably hard to endure. Things have improved in recent years, I can engage with the world through the internet (which was not an option for years) but i am still largely bedbound. It is time the world stopped mistreating the thousands and millions of people suffering, and unable to stand up (literally) for themselves, with this hideous condition. This film is so inspiring to me, as well as deeply upsetting. I don't talk about my illness publicly because of the fear of the continued ignorance and judgement. I feel very vulnerable even writing this (to the point I cannot guarantee I won't delete it at some point). The forum is the place I have created and come to escape, and I consciously choose to not focus on it here, so I am a tad conflicted about this. But as the film title says, it is time for UNREST because things need to change, and not just for me. 

 

Well said, domino. And thank you for sharing your experience with us.

Thank you for your kind and supportive comments Maghat. There is an awful lot of research on the biological nature of ME, the one that fits me most is the mitochondrial failure model. My heartfelt best wishes to you in your own struggles with chronic illness.xx

Hi Maghat, truly glad to hear life is fairly open to you at the moment.

I'm aware of Julia Newton, but have to say her 'fatigue' research is slightly side stepping the issue as far as MECFS is concerned. And part of the problem with misunderstanding this illness. I and others reject the chronic fatigue label for that reason, its Myalgic Encephalomyelitis, a multi system neuro immune illness, of which fatigue is only a tiny part and the word does not cover it in terms of severity of length of symptom.
If I could recommend any Dr in the UK field it would be Dr Sarah Myhill, for anyone interested!

I must confess, I am not entirely comfortable talking about me or ME, and sometimes a little information, or looking at one approach, is worse than no information at all and can be misleading. But, I really wanted to give the information about the film so people can inform themselves. So please forgive me if I don't elaborate further!

Thanks for sharing this trailer domino, looks very moving and touching movie about this illness. I like these movies where you watch things from another persons perspective. And I like the message hidden in this story, how powerful and strong people are when they face the impossible.

These kind of films let you step insinde to another persons world. I can't imagine what this is like and maybe after seeing this I might be able to understand MECFS better. Hopefully there will be a DVD so I can have change to see this.

Enlightenment is really important. I myself have not yet had to deal with this topic. That's why I'd like to see this movie. In Germany probably only on DVD.
It is important that research does everything to get better results to help people in such situations.
Great that you have drawn attention to the topic.

For anyone in the US who is interested, 'Unrest' is available all week to stream for free on PBS here

For everyone else, the film is available on iTunes, Amazon, google, and many other on demand platforms and now also on DVD and blu-ray.

 

There was also a brilliant article in The Independent at the weekend, link below for anyone interested to read.

 

Time for Unrest: Why patients with ME are demanding justice